Posts Tagged ‘gaucher treatment’
Bone Marrow Transplant Hanging Over Our Heads
Posted by Melissa | Filed under Gaucher Disease, Thoughts From Mom, Treatment
The whole bone marrow process is out of our hands. It’s up to the doctors to make things happen.
But that doesn’t really stop people from asking us about what’s going on with the whole thing. And to be completely honest, ever since we found out our other son was not a match for Kyle, we’ve [...]
Tags: Gaucher Disease, gaucher disease treatment, gaucher disease type 3, gaucher treatment
Oops, forgot to mention…
Posted by Melissa | Filed under Gaucher Disease, Treatment
Yesterday when I posted about Genzyme halting production on the medication that Kyle takes to treat the physical symptoms of his disease, I forgot to mention why…
They reason they have to halt production is because the plant in Boston has to be decontaminated due to a virus, so there really isn’t anything anyone can do [...]
Tags: gaucher treatment
Genzyme Halts Production – Kyle’s Treatment May Not Be Available
Posted by Melissa | Filed under Uncategorized
I just got word that the company that makes the Cerezyme treatment for Gaucher disease, has halted production in the one and only plant where treatments are made.
According to Genzyme, current inventories of Gaucher disease treatment Cerezyme are not sufficient to meet global demand. The plant will not return to full operation until the end [...]
Tags: gaucher treatment
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