Posts Tagged ‘gaucher disease treatment’
Bone Marrow Transplant Hanging Over Our Heads
Posted by Melissa | Filed under Gaucher Disease, Thoughts From Mom, Treatment
The whole bone marrow process is out of our hands. It’s up to the doctors to make things happen.
But that doesn’t really stop people from asking us about what’s going on with the whole thing. And to be completely honest, ever since we found out our other son was not a match for Kyle, we’ve [...]
Tags: Gaucher Disease, gaucher disease treatment, gaucher disease type 3, gaucher treatment
Treatment
Posted by Melissa | Filed under Thoughts From Mom, Treatment
I’m really amazed at how quickly and effectively the Cerezyme treatment is working. It’s not just his tummy that is getting smaller, but is disposition is better.
Kyle has always been an easy, happy baby, but since he started treatment there’s an even deeper contentment. It’s hard to explain this change. But from what adults who [...]
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