Busy, Busy, Busy

Posted by Melissa | Filed under Home Life, Pictures

Wow, it’s been awhile since I’ve posted an update. With my 2 older kids out of school for the summer it’s been pretty busy around here, and there’s always so much to do outdoors.

But just a bit of news before I post some pictures of Kyle…

We might have a cord blood match for Kyle. Which was really hard news to hear. On the one hand, it’s really an incredible thing. On the other, it means I can’t keep living in denial that Kyle’s just fine.

He’s not.

His disease will continue to progress, and the only chance we have to save him is with a transplant. Doing a cord blood is less risky than bone marrow, and the potential for success is the same. If they’re going to do one, they want to do it while he’s under the age of 2 and because he is doing so well right now. His disease hasn’t shown up in any way other then a slightly funny thing he does with his eyes, the fact that his growth has been stunted and his development is behind.

But now that he is on regular treatment, and essentially getting 2 treatments for every 1 since his dose is double, his growth and development have already improved. His appetite, his mobility, a lot of things have been improving.

So we have a tough decision ahead of us about whether or not to do the transplant. In the meantime, we’re waiting to hear from the transplant team to set up a meeting. Then we’ll make the trip to talk everything over with them, and then make our decision after that.

In the meantime, I’m going to continue enjoying each day with my sweet little boy. Like the fun we had tonight while I was feeding him. Every time I put in a spoonful of food, he would say “mmm”, and then I would copy him and he would laugh his little butt off. I got some good shots of him eating and laughing. You’ll notice the chunky food he’s now eating, and lots of it too – and then he still gets up at night to drink at least 4 bottles of formula. His face and legs are starting to get chunky, his arms are still pretty skinny, but we’re working on it :-)

Here are 3 pictures:

DSC_01301-300x200 Busy, Busy, Busy

DSC_01191-300x200 Busy, Busy, Busy

DSC_00271-200x300 Busy, Busy, Busy

Permalink | Comments (3) | Jul 25, 2009

3 Responses to “Busy, Busy, Busy”

  1. Bonnie Says:
    July 26th, 2009 at 7:38 am

    It’s great to see how much Kyle is filling out. And also great to hear that they have found a match. Not so great that you have to make some heart wrenching decisions. Just know that you have a great support system and all though some of us will never really know how hard it is for you and Jeff and your families, we do understand the pain and frustrations are praying some how for this to be easier for you.

    Take Care

  2. Ann Says:
    July 29th, 2009 at 1:29 pm

    glad to hear that everything is going well for your little man! Keep positive.

  3. Michell Says:
    July 30th, 2009 at 1:40 pm

    So good to hear that everything is going good. A possible match is also good news :) I know this will be a difficult decision to make, but know that you have us to support you in any way possible. Good to see some pictures too :) he’s really filled out since I last saw him. Keep in touch, Always thinking of you.

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