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Archive for the ‘Home Life’ Category

Any Day Now

Posted by Melissa | Filed under Appointments, Home Life, Treatment

I finally met with our soon-to-be home nurse and her manager at the hospital during Kyle’s last treatment. The nurse is super nice, and I know she is going to work out great for us.
It turned out to be a busy day. The home nurse, her manager, the co-ordinator at the hospital, the genetic counsellor, [...]

A Much Needed Update

Posted by Melissa | Filed under Home Life, Pictures, Updates

I’ve haven’t been posting much. I guess it’s because we’ve reached a point where we know what we’re dealing with, and I suppose, now we’re just dealing. But I know that my posts here are a way to keep friends and family who care about Kyle updated on how he’s doing, so I’m going to try to [...]

It’s official!

Posted by Melissa | Filed under Home Life, Updates

After speaking with 5 doctors who are leading experts on GD type 2 and 3, we’ve decided not to go ahead with the transplant.
It sucks that now there’s isn’t any hope of a miracle cure like we were led to believe a transplant could be. But apparently they’ve never seen anyone with the 2 mutations that Kyle [...]

Busy, Busy, Busy

Posted by Melissa | Filed under Home Life, Pictures

Wow, it’s been awhile since I’ve posted an update. With my 2 older kids out of school for the summer it’s been pretty busy around here, and there’s always so much to do outdoors.
But just a bit of news before I post some pictures of Kyle…
We might have a cord blood match for Kyle. Which was really hard [...]

How old is your baby?

Posted by Melissa | Filed under Home Life

This is a question I get asked a lot, the same as any other mom. So when we’re out running errands, the check-out gals, the grandmothers, and other mothers are all asking, “How old is your baby?”
So when I say that he is 10-months old, you can see the surprise and question in their eyes. [...]

Tags: baby, gaucher

A New Day…What Will It Bring?

Posted by Melissa | Filed under Home Life

Today is so beautiful. The crisp morning and the warm sun tickle the senses and promise good things to come. I plan to sit on my porch with my first cup of coffee in a few minutes while my 4-year old races around the yard and my precious little one still sleeps in his bed. [...]