Appointments |

Archive for the ‘Appointments’ Category

Any Day Now

Posted by Melissa | Filed under Appointments, Home Life, Treatment

I finally met with our soon-to-be home nurse and her manager at the hospital during Kyle’s last treatment. The nurse is super nice, and I know she is going to work out great for us.
It turned out to be a busy day. The home nurse, her manager, the co-ordinator at the hospital, the genetic counsellor, [...]

Quick Update: Assessment For OT and PT

Posted by Melissa | Filed under Appointments, Quick Update

Just got word that Kyle will get his assessments for Occupational Therapy and Physiotherapy the third week of July.
I think it’s so awesome that the centre is just a 10 minute drive, and that all of the services are completely free. If we were to find someone outside of the Pathways centre, I know that our insurance would only cover part of the cost. [...]

Time To Get Kyle Some More Help

Posted by Melissa | Filed under Appointments, Gaucher Disease

It’s no secret that Kyle is developmentally behind, and with his first birthday fast approaching, I think it’s time to get him some real help so he can get on track.
When I spoke to one of Kyle’s specialists about physical therapy and the like for Kyle, he said we could look into that if we [...]

Tags: Gaucher Disease

First Enzyme Replacement Therapy Treatment

Posted by Melissa | Filed under Appointments, Gaucher Disease, Treatment

Yesterday was Kyle’s first treatment, and it went amazingly well. He took it all like a pro.
He had a bottle of formula after getting his blood work and IV line ready to go, then he fell asleep in his stroller. I left him with the nurse to go and get a coffee, and when I got [...]

First Treatment Date Set

Posted by Melissa | Filed under Appointments, Treatment

Finally, some progress has been made – we have a date for Kyle’s first enzyme replacement therapy session.
His appointment was originally set for tomorrow, but unfortunately, his Doctor was not able to be there to supervise his treatment, and then the doctor they had lined up to replace Kyle’s doctor is also away. So with no doctor available to supervise him [...]

Finally Getting Treatment

Posted by Melissa | Filed under Appointments, Updates

I finally got a call from the genetics/metabolics doctor this afternoon. She said the enzyme replacement therapy medication has been released for Kyle. They’ll be in touch with me to set up a date for his first treatment, and she’s looking at it being next week. Woo hoo! We’re finally getting somewhere!
When asked if I [...]