Finally Getting Treatment

Posted by Melissa | Filed under Appointments, Updates

I finally got a call from the genetics/metabolics doctor this afternoon. She said the enzyme replacement therapy medication has been released for Kyle. They’ll be in touch with me to set up a date for his first treatment, and she’s looking at it being next week. Woo hoo! We’re finally getting somewhere!

When asked if I had any other questions, I asked her if the HLA typing results had come in yet for the bone marrow transplant match. Unfortunately, they haven’t, so we’ll have to hang tight and keep praying that Jason (Kyle’s 4-year old brother) is a match.

But I did forget to ask about the results for the hearing/brainwave test they did last Thursday. His hearing is perfect, they know that already, but what they want to know his how his brain is processing. So I’ll have to be sure to ask about it when they call to set up his first treatment appointment.

Permalink | Comments (2) | Apr 29, 2009

2 Responses to “Finally Getting Treatment”

  1. Nell@SheSnaps.com Says:
    April 29th, 2009 at 8:03 pm

    Praise God! I’m going to add your button to my casual friday everyday blog.

    Nell

    Nell@SheSnaps.com’s last blog post..wordless wednesday: glory

  2. Bonnie Says:
    April 29th, 2009 at 11:40 pm

    Hi Lis,

    Glad to hear that things are actually starting to take a step forward rather then no steps at all. I knew you were having to deal with an awful situation but after reading your blogs, I can’t imagine. I didn’t really know what you were dealing with. Our hopes and prayers are with you and Jeff and the family. Please let us know what we can do to help.

    Thinking of you,
    Bonnie and Stu

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