First Enzyme Replacement Therapy Treatment |

First Enzyme Replacement Therapy Treatment

Posted by Melissa | Filed under Appointments, Gaucher Disease, Treatment

Yesterday was Kyle’s first treatment, and it went amazingly well. He took it all like a pro.

He had a bottle of formula after getting his blood work and IV line ready to go, then he fell asleep in his stroller. I left him with the nurse to go and get a coffee, and when I got back they had his cerezyme medication hooked up and going into him.

When I saw that, tears flooded my eyes. My baby was finally getting the medication he needed after dealing with the symptoms of Gaucher for the past 7 months. Finally, something was being done to help him.

Kyle slept all morning, even with the nurses disturbing him to check his blood pressure and heart-rate every 15 minutes. The good news is that he didn’t have a reaction, which I’m so thankful for!!

He woke around noon, I fed him lunch, and then put him in the baby carrier to walk around. We ended up spending the next hour walking the halls while I pushed his IV pole. He was as happy as could be

Once mom was tired of walking, we went back to the room and played with toys for awhile. Then he had another bottle, and eventually dozed off again for pretty much the remainder of his treatment time, lol! I was amazed by how well the day went considering we were there for so long.

We head back in for the second round of treatment on the 26th.

3 Responses to “First Enzyme Replacement Therapy Treatment”

Michell McKellar Says:
May 14th, 2009 at 3:31 pm

I’m so glad everything went so well. Finally getting the treatment he has needed for so long.
Patti Says:
May 14th, 2009 at 6:16 pm

I’m really glad everything went good and he was acting like a true pro Before long you will notice a big chance and i’m so glad for him.I’m here every step of the way if you need me to be.
Mom
Tishia Lee Says:
May 14th, 2009 at 10:07 pm

I think it’s only natural that the tears started once you saw the medication hooked up and going into your baby. It made me tear up just reading it! I’m glad to hear that things went well and it sure sounds like he was a trooper!

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