Archive for August, 2009
It’s official!
Posted by Melissa | Filed under Home Life, Updates
After speaking with 5 doctors who are leading experts on GD type 2 and 3, we’ve decided not to go ahead with the transplant.
It sucks that now there’s isn’t any hope of a miracle cure like we were led to believe a transplant could be. But apparently they’ve never seen anyone with the 2 mutations that Kyle [...]
My cherished angel
Posted by Melissa | Filed under Pictures
There Are Too Many Unknowns…
Posted by Melissa | Filed under Gaucher Disease, Thoughts From Mom, Treatment
Yes, they have a cord blood match for Kyle. But are we going to do the transplant? Well, in my quest to learn as much as possible before making a life and death decision regarding Kyle, I have to say that as of right now – my answer is no. Here’s why:
I contacted 4 of [...]
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