Archive for April, 2009

Finally Getting Treatment

Posted by Melissa | Filed under Appointments, Updates

I finally got a call from the genetics/metabolics doctor this afternoon. She said the enzyme replacement therapy medication has been released for Kyle. They’ll be in touch with me to set up a date for his first treatment, and she’s looking at it being next week. Woo hoo! We’re finally getting somewhere!
When asked if I [...]

Read more | Comments (2) | Apr 29, 2009

Wordless Wednesday

Posted by Melissa | Filed under Pictures, Wordless Wednesday

Tags: , ,

Read more | Comments (3) | Apr 29, 2009

A New Day…What Will It Bring?

Posted by Melissa | Filed under Home Life

Today is so beautiful. The crisp morning and the warm sun tickle the senses and promise good things to come. I plan to sit on my porch with my first cup of coffee in a few minutes while my 4-year old races around the yard and my precious little one still sleeps in his bed. [...]

Read more | Comments (1) | Apr 29, 2009

No Word Yet…

Posted by Melissa | Filed under Updates

Today has officially been 2 weeks since myself, my husband, and our 4-year old son had blood work done to find out if any of us are a bone marrow match for Kyle.
But the day went by without a phone call, and now I’m worried that none of us are a match so they didn’t [...]

Read more | Comments (5) | Apr 29, 2009

Our Fight For Kyle

Posted by Melissa | Filed under Updates

This is the beginning of a new blog. A blog about Kyle and our life as we fight this killer disease – Gaucher Type 3.
Read Kyle’s Story
Find out what Gaucher Disease is.
Please check back soon. I will updating this blog on a regular basis.

Read more | Comments (2) | Apr 28, 2009